Vikram Bhaskaran was leading creator partnerships at Pinterest when his father started showing early symptoms of ALS, a rare, terminal neurodegenerative disease.

“It turned my world upside down,” Bhaskaran said. He worked during the day, and spent his evenings Googling the illness and treatment options and in Facebook groups. But Bhaskaran discovered that finding clear, helpful information about his father’s condition was incredibly difficult.

“I was sitting in Silicon Valley surrounded by some of the brightest minds in engineering and design,” he said. “But when it came to health, I felt it was like the dark ages.”

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